COVID-19: Advice from HCM Doctors

The following guidelines have been developed by HCM specialists at the following hospitals:  Brigham and Women’s Hospital in Boston, Careggi University in Florence, Italy, Stanford University, the University of Michigan and the University of Pennsylvania.

At the bottom of this page you will find the document as a pdf file which should allow you access to the links contained in the document.

 

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COVID 19 Day Ho et al page 3_3Due to technical limitations, the links on the images above cannot be directly accessed, but you can download this pdf file:

COVID-19 Patient Info_institutions

and you will be able to access all links directly.

ICD Patients – Combat ICD Anxiety

This informative blog article written by a social worker for the University of Michigan’s Health Blog has some great tips on how to deal with anxiety when living with an ICD.

I recommend it.

Exercise Helps HCM Patients – Results from RESET-HCM Study

Results from a recent study conducted at the University of Michigan and Stanford show that patients who participated in a moderate-intensity cardiovascular exercise program showed a small, but statistically significant increase (6%) in exercise capacity over those who did not participate in the program.  Of note, no adverse events were reported in any of the 136 adults who participated in the RESET-HCM study over its four-month duration. These results were announced over the weekend at the American College of Cardiology meeting in Washington, D.C.

A companion editorial noted that this study is important for establishing the positive impact of exercise on HCM patients. Now, the need is for future research to establish safe exercise guidelines for HCM patients.  Many remain reluctant to exercise due to fear of suffering an adverse event during exercise.

Here is a video interview with one of the authors of the study, Dr. Sara Saberi, discussing the findings at ACC.

Stay tuned to HCMBeat for more about this important work which will hopefully lead to improved quality of life for HCM patients.