Increased COVID Risk for HCM Patients

A recent retrospective study of HCM patients with COVID-19 concluded that HCM patients are at increased risk of hospitalization and death from a COVID-19 infection. 

In particular, the study found that the following groups of HCM patients were at increased risk of adverse complications from COVID-19:

  • patients with the obstructive form of HCM
  • patients with left ventricular systolic dysfunction
  • older patients
  • patients who also have other high risk conditions for COVID-19 such as hypertension, diabetes, obesity or those who are smokers 

Based on this data, the researchers suggest “the need for aggressive and systematic implementation of prophylactic measures for SARS-COV-2 in patients with inherited cardiac disease.”   

At this time, such measures include vaccinations, masking, and therapeutic agents such as Paxlovid and monoclonal antibodies.

IMPORTANT NOTE:  This study finished enrollment just as COVID-19 vaccines became available. Hence, these results do not take into account the effect of vaccinations or newer COVID-19 therapeutics such as Paxlovid.  

COVID-19: Advice from HCM Doctors

The following guidelines have been developed by HCM specialists at the following hospitals:  Brigham and Women’s Hospital in Boston, Careggi University in Florence, Italy, Stanford University, the University of Michigan and the University of Pennsylvania.

At the bottom of this page you will find the document as a pdf file which should allow you access to the links contained in the document.

Continue reading “COVID-19: Advice from HCM Doctors”

Coronavirus Guidelines for HCM Patients

In consultation with numerous HCM specialists across the U.S., the Hypertrophic Cardiomyopathy Association has compiled a document of guidelines for HCM patients to follow during the current coronavirus crisis.

Some of the specific recommendations are as follows:

  1. Patient with class 3 or 4 heart failure – specifically those with depressed ejection fractions and those awaiting transplantation – should be advised to stay close to home and minimize exposure in social gatherings.
  2. All patients should be encouraged to practice good personal hygiene including frequent hand washing and to use of disinfectants on all surfaces, doorknobs and banisters.
  3. If a HCM patient tests positive for the virus, they should contact their HCM specialist immediately in order to coordinate care with their local physicians and HCM team.

You can find the whole document here.

Additionally, the HCMA has recorded a series of informative webinars with several
HCM experts which you can find here.