Coronavirus Guidelines for HCM Patients

In consultation with numerous HCM specialists across the U.S., the Hypertrophic Cardiomyopathy Association has compiled a document of guidelines for HCM patients to follow during the current coronavirus crisis.

Some of the specific recommendations are as follows:

  1. Patient with class 3 or 4 heart failure – specifically those with depressed ejection fractions and those awaiting transplantation – should be advised to stay close to home and minimize exposure in social gatherings.
  2. All patients should be encouraged to practice good personal hygiene including frequent hand washing and to use of disinfectants on all surfaces, doorknobs and banisters.
  3. If a HCM patient tests positive for the virus, they should contact their HCM specialist immediately in order to coordinate care with their local physicians and HCM team.

You can find the whole document here.

Additionally, the HCMA has recorded a series of informative webinars with several
HCM experts which you can find here.

HCMA Founder Has Successful Heart Transplant

Lisa Salberg, Founder and CEO of the Hypertrophic Cardiomyopathy Association, underwent a successful heart transplant last week at New Jersey’s Newark Beth Israel Hospital. Her  experience is featured in this article published today on NorthJersey.com  (The Bergen Record).

Lisa’s future plans include continuing her many advocacy efforts on behalf of HCM patients, as well as running in a 5K race.  We have a feeling that Lisa will be competing in Track & Field events at the Transplant Games of America before you know it!

EDITED TO ADD STORIES ABOUT LISA HOLDING HER OLD HEART IN HER HANDS ON VALENTINE’S DAY IN ORDER TO EDUCATE OTHERS ABOUT HCM.

Inside Edition (with video)

News 12 New Jersey (with video)

ABC News

BBC Radio Interview